Organized by the World Congress for Freedom of Scientific Research and the “Associazione Luca Coscioni” in cooperation with the Permanent Mission of Italy to the United Nations and International Organizations in Geneva and with the International Institute for the Human right to science

Tuesday 20 September 2016, h. 13.00 – 15.00

Room, XXVII,

Palais des Nations, Geneva



Introduction Hon. Mr. Benedetto Della Vedova, Under-Secretary of State for Foreign Affairs and International Cooperation – Italy


Session 1: The role of civil society in monitoring the right related to science

Moderator: Ms. Filomena Gallo and Mr. Marco Cappato, Associazione Luca Coscioni

“The right to science and the UN “, Mr. Mikel Mancisidor de la Fuente, Vice-Chairperson of the Committee on Economic, Social and Cultural Rights (CESCR)

“The right to scientific research: from theory to advocacy”, Mr. Cesare Romano, Professor of Law & W. Joseph Ford Fellow Director, International Human Rights Clinic, Loyola Law School, Los Angeles


Session 2: Scientific research – between decision-making and human rights

Moderator: Ms. Marisa Jaconi, University of Geneva, and Marco Gentili, Amyotrophic Lateral Sclerosis patient

“The use of human embryonic stem cells research and the opportunities of genome editing”, Malin Parmar, Lund University

“Patient and citizen empowerment”, Dr. Marco Traub, Director of TransEuropean Stem Cell Therapy Society, Bern-Stettlen- Switzerland    


*Beverages and sandwiches will be served.